OCR: SP&P: Participant Education

Clinical Trials

Participant Education

Resources

For questions regarding your rights as a research participant at the University of Pittsburgh or the University of Pittsburgh Medical Center, please contact the Human Subject Protection Advocate of the University of Pittsburgh IRB at 1-866-212-2668.

General Information Top

About Clinical Trials (National Institute of Allergy and Infectious Disease Vaccine Research Center)
A Guide to Understanding Informed Consent (National Cancer Institute)
An Introduction to Clinical Trials (National Institutes of Health)
Background Information on Clinical Research (CenterWatch)
Clinicaltrials.gov/
Clinical Trials Interactive Tutorial (National Library of Medicine, MEDLINEplus)
Protecting Human Study Subjects (Food and Drug Administration)
Understanding Risk: What Do Those Headlines Really Mean? (National Institute on Aging)

Cancer Trials

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From Test Tube to Patient: Protecting America's Health Through Human Drugs (Food and Drug Administration)
Educational Materials About Clinical Trials (National Cancer Institute)
Taking Part in Clinical Trials: What Cancer Patients Need to Know (National Cancer Institute)
Understanding Cancer Prevention Trials (National Cancer Institute)
Understanding Screening Trials (National Cancer Institute)
UPMC Cancer Centers

Children

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Children's Assent to Clinical Trial Participation (National Cancer Institute)
Children's Hospital of Pittsburgh: Research
KidsHealth for Parents (sponsored by Nemours Foundation)

Costs Top
Clinical Trials and Insurance Coverage: A Resource Guide (National Cancer Institute)
Medicare and Clinical Trials Quick Reference Guide (Centers for Medicare and Medicaid Services)
Medicare and Clinical Trials (Centers for Medicare and Medicaid Services)
States That Require Health Plans to Cover Patient Care Costs in Clinical Trials (National Cancer Institute)

Drugs and Devices Top
From Test Tube to Patient: Improving Health Through Human Drugs (Food and Drug Administration)
Reporting Complaints Related to FDA-Regulated Clinical Trials (Food and Drug Administration)
Clinical Trials of Medical Treatments: Why Volunteer? (Food and Drug Administration)

Gene Therapy ResearchTop
NIH Genetic Modification Clinical Research Information System (GeMCRISÂ®)
Genes and Gene Therapy (MedlinePlus)
Human Genome Project Information: Gene Therapy

HIV/AIDS Top
AIDSinfo
Taking Part in Research Studies: What Questions Should You Ask? (Center for Disease Control (CDC), Divisions of HIV/AIDS Prevention)
What is an AIDS Clinical Trial? (US Department of Health and Human Services, AIDSinfo)

Mental Health Research Top
A Participant's Guide to Mental Health Clinical Research (National Institute of Mental Health)

Minorities

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CBCFHealth.org (Part of the Congressional Black Caucus Foundation, Inc.)
FDA Issues Guidance on Race and Ethnicity Data (Food and Drug Administration)

Older Adults

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University of Pittsburgh Institute on Aging

Serious or Life Threatening Illnesses

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Should I Enter a Clinical Trial? A Patient Reference Guide for Adults with a Serious or Life-Threatening Illness (ECRI)

Women's Issues

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Magee-Womens Research Institute
WomanCanDo.Org (Society for Women's Health Research)

Printable Research Participant Brochure

Study Finder
Search for studies currently underway at Pitt.
To Learn More About the Research Areas

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Links to Other Selected Study Sites
For more studies that are being offered click here.